A Child’s Understanding…
Do you think 3 years olds understand the concept of growing up?
I'm not sure I think they do but with how Kaylee talks, about not wanting to be 4, she likes being 3. I'm not sure if she just likes the number 3 or truly is afraid of getting older. Maybe it has nothing to do with being afraid and everything to do with Peter Pan and the whole concept of not growing up that movie revolved around.
Sometimes though it's heartbreaking to hear and it might be me more projecting my feelings on getting older and fears of dying in general.
I actually hate though that she goes to bed sad sometimes. She did not want to go to bed tonight. Cried and tried to talk to me in an effort to delay bed. But the mini breakdown she had just shows how tired she was anyhow. I'm sure if I go in there in 15 minutes she'll be asleep.
She's a joy to wake up to though.
"Mother (my child no longer calls me Mommy, thanks Peter Pan!) It's morning! I love you!" or it can be something like, "I love you! Good Morning!" Got to love the kids and their way of just making you melt.
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Strike a Pose
Not sure what Kaylee was doing or why, but I got the camera out to take a picture of the pond in the front yard (but it was gone by the time I finally went out) and she started posing for the camera. So I thought I'd share.
The Broken Finger
Remember this picture? Yeah that was of Kaylee's finger right before Christmas. She tripped and slid into the wall jamming her fingers. See that really purple one? Yeah for a day or two she didn't really use it but didn't complain of any pain. The bruising went away on both fingers but the swelling didn't on the purple one.
I finally decided that the swelling wasn't normal and we saw the doctor today. He sent us for X-Rays. The x-ray tech let Kaylee see the x-ray and it was clear, it's fractured (the tip). So we're scheduled for a Ortho appointment on Friday to determine what to do about it. From my reading there isn't much to do beyond what I was already doing with it. So we'll see.
She isn't in any pain at all, lets people touch it, move it, squeeze it, and so forth without even a whence of pain, which the doctor said is a good sign. Dr. Google says the options are splinting or surgery. I'm hoping for the splinting.
What's kind of annoying me is that I wanted to take her to the doctor the day this picture was taken, but everyone insisted she was fine since she wasn't crying bloody murder. I read once again on Dr. Google that broken fingers can often not hurt or just be a dull ache. I don't think by waiting two weeks that we've done damage, but it could have been dealt with sooner rather than now.
Anyhow I had to document my daughter's first broken bone. Here's hoping it's her one and only broken bone!
Is it time…
I was reading something, a comment, that said, "I wish I could get my daughter to wear pants!" This woman's daughter is like 2.5. It got me thinking. Kaylee is 3.5 and I still chose what she wears, and dress her. I know I should probably let her to the dressing sooner rather than later, but does she really need to chose what she wears?
I see it as one argument we get to avoid in the morning. I mean I'd never give her options that I'd hate her to wear, she'd get to chose between two outfits. But seriously do I even need to do that? I mean I know I need to start letting her put her pants on and her shirts on, because she has to learn that (she can take clothes off but not necessarily get them on) but do I need to start letting her chose what she wears each day?
Very Annoyed…
Kaylee's blood sugar have been all over the place. We saw the doctor today and he says her blood work is perfect. Her Insulin levels are normal, her blood sugar is normal when we get her blood work done. But she's all over the place. He said the only way for the blood work to come back perfect and her have lows is if we were seeing extreme highs as well. And frankly we're not seeing any extreme highs at all. Just lows. So his conclusion is to increase her medication and also perhaps find a new meter because the results just make no sense to the professional work up.
So now I'm doing research on blood glucose meters. I've used One Touch and they sucked and also have used the Freestyle Meter. AccuChek doesn't give away a free meter and I don't know if I want to spend the money to see if that one actually works. I'll have to see how much it costs. I'll have to look up other brands as well. Sadly the only thing covered by our insurance is One Touch or AccuChek.
It's just very frustrating. She woke up at 42 this morning. I've never seen lows like that since her diagnosis. It all started when she went to school. And it's been out of control ever since. Very annoying.
It’s all so random
So today's post is going to just be a mass amount of randomness...
1. So on Sept. 30th we got Brian moved out of the house and turned in the keys with a nice little letter telling the property management company that we aren't idiots and know our rights. It seemed to scare them into doing what they need to do, the house is back on the market at a reasonable rent and I think we'll be getting our security deposit back by the 21st.
2. I went to the doctor today. I was worried about some moles. The doctor said they looked fine and that I shouldn't worry, especially about the smaller ones. So I asked her for some anti-anxiety medication for when I have really bad nights. She gave me something, forgot it's name, and said only take it once in a while, don't use it constantly. I don't like medication anyhow so I'll only use it when I'm having a really bad night. I think maybe just having it available too will make me feel better. You know, knowing you have the ability to go to the drug should you need to.
3. Took Kaylee to see the doctor as well, she had a lump on her back. He said it's just a bruise. LOL! Sometimes I feel so stupid taking her in for small things but Kaylee is not a normal child and the small things might be big things for her. He says she's fine and not to worry. But I know he understands why I worry, I mean she has a chronic illness that we deal with everyday. How can I not worry.
4. The doctor asked me if I knew the trigger of my anxiety. I said, yeah my daughter has a chronic illness and I'm going through a divorce. She was like, yeah that will do it.
5. I wonder how I'm going to broach the subject of the divorce with Kaylee's doctor's, both her pediatrician and her endocrinologist. None of them ask about home life, so I don't feel it's appropriate to offer up that kind of information. But sometimes when they ask how Kaylee's dad is doing I'm like, fine. I guess it's easier to pretend that he's fine rather than potentially have them feel weird because I said "I don't know, we're divorced."
6. Kaylee's doctor noticed my necklace today and I have to wonder if that partly had to do with the top I'm wearing and it's insanely low cut (I try to get it not to look that way but so far no luck). LOL!!
7. Kaylee fell and hit her head today at school. They say she's fine that she got up and was back at it. But they put ice on it. I can imagine when she gets home it's going to be all she talks about. Hell for weeks, I bet you she'll tell her Endo in two weeks that she fell and hit her head. She can hold onto that kind of thing for weeks.
8. I'm going to set up an echocardiogram for Kaylee here soon. I don't think she needs it but the doctor would feel better if she had it done. Her pediatrician didn't think it was necessary but told me to do it anyhow because obviously her Endo felt it was important. It isn't a complicated test so I'm not worried. I don't even think it's that long.
9. NaNoWriMo starts in Nov. I'm going to write a novel. Not sure about what yet but I'll write something.
10. I have to charge my camera battery. Must remember to charge the battery.
1st Day of School…
So today is Kaylee's first day of school. We got up at 7am and got ready and ate breakfast. Then I made the mistake in allowing Kaylee to watch a TV show. BAD IDEA!
But soon I got her to realize she was going to school and she decided she had to leave right then and there.
So off we were to school. We got there and she was immediately happy with the toys. I showed her where the bathroom was so lets hope she doesn't have an accident today. She liked her teacher and the kids in the class. There is another girl in the class named Kaylee as well. Hopefully that doesn't become too much of an issue.
Anyhow I took some pictures but they didn't come out well. I only got 3 good pictures out of 50 shots. I'll take more later today.
When I was leaving Kaylee practically ignored me. LOL! We had to force her to say goodbye. It's okay though, that's good because I'd hate to have her be all crying and junk like that. So it's good I've been taking her to the gym and other places, Sunday School, and leaving her. It seems to have allowed her to go to these things and not freak out that I'm leaving. Although I think she thinks I'll be back in an hour or so. But time should fly for her.
So what are my plans today?
Laundry
Start on Kaylee's Costume
Look for Jobs
Oh also they have a Halloween Carnival that I think I'm going to volunteer at. It should be fun.
Haircut…
Today Kaylee got a hair cut. I took pictures but I don't think any turned out good in regards to her hair cut.
My Feet Still Hurt
So yesterday started at 6:30am and we got up and did Kaylee's hair and got her all pretty for Disneyland. At like 7:45am we hit the road and luckily didn't run into much traffic at all. Got to the park and made it inside finally at 10am.
Right off the bat all the characters were out front so we got pictures with all of them. Then we went to see the princesses. While in line we found out that from where we were it was a 2.5 hour wait. So we gave up on the princesses and headed over to the Nemo ride since we didn't get to go on it the last time we went to Disneyland.
Kaylee was a bit worried about that ride for whatever reason, probably because it was under water and in an enclosed space but she quickly got over it and loved it.
Then we hit some nasty food place and headed over to Small World. After Small World we went and saw Minney and Mickey Mouse. Then we went to the Pirates and had fun on that ride. Then we went on Peter Pan's ride. After that we went to dinner and had more nasty food.
Then Kaylee and I headed over to the Princesses and Patti went to go on Space Mountain. Luckily it worked out perfectly and we both finished with that at the same time.
Then we went on the Matterhorn and Kaylee loved it. Hand her arms up the entire ride. LOL!
Then we took a small break and went on the Haunted Mansion.
Then we took the train and then sat and watched the Fireworks. Then headed home.
For as long as we were there we sure didn't get a lot done. My feet still hurt though. I'm pleased to say though that I didn't spend more than 200 bucks while there though. Pretty good, that's including paying for Kaylee's ticket.
The Correction…
So we've corrected Kaylee's dose down a bit so now her Blood Sugar Levels are within normal ranges at all times now, including the morning.
Today I was putting together a letter that's going to go to the school telling of Kaylee's medical needs and so forth and was doing a bit of research on symptoms of low blood sugar and was rather surprised that none of the sites for Hyperinsulinism, except the Children's Hospital of Philadelphia, had any information on what symptoms of low blood sugar are, or how to treat low blood sugar fast should you need to. I found this rather odd. I should put together an information page but the thing is I could find no information at all on how to bring blood sugar up quickly and keep it up rather than having a crash after 20 minutes.
We planted some pumpkin seeds today. Hopefully they'll come up. It would be cool. It says it will take one to two weeks to see if the seedlings actually pop up. If they do then I think we'll be good. I don't think we're starting too late either because Underwood hasn't even planted their pumpkin patches yet. I just have to remember to water the poor things.
