Tonight’s Mystery Diagnosis featured a family who is part of the Congenital Hyperinsulinism support group. It was hard to watch. 1. It was amazing the lack of care doctors showed over what was happening to the child. Luckily their pediatrician wasn’t callous enough to tell them to feed their child more. He actually knew something was wrong and worked to find out what. 2. The poor kid’s diagnosis took nearly 7 months. 7 MONTHS?! Kaylee got her diagnosis within what 1 day of her third seizure. If we counted back to the first seizure I called the doctor about, it was 3 weeks. I think we’re lucky that her pediatrician first listened to us and second knew a good Pediatric Endocrinologist (even if she sucks in general) who easily identified the condition just based on what Dr. Whyte told her.
I’m really lucky to have him as a Pediatrician. And I’m depressed he’s leaving the practice. Hopefully we’ll be able to continue with him and also with our current Endocrinologist. If it comes down to choosing between Dr. Whyte and our Endocrinologist I think I’m going to have to stick with the Endocrinologist because it’s hard to find a good Endocrinologist and he’s just plain great. He does so much more than the doctors at CHLA ever did. That will suck though if we can’t see Dr. Whyte anymore. Seriously it would suck. He’s always done right by Kaylee, how can I trust another doctor who doesn’t even know her to take good care of her?
Anyhoot, back to the show. It just pissed me off and made me feel so bad for the family. That poor child has speech delays, delays that may have been avoided had someone just taken the time to try to figure out why he was hypoglycemic. Remember hypoglycemia is a symptom of a condition not a condition in itself.
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